Hope is a prerequisite for Action

On this episode we talk with Kacy and Tim Wyman. Kacy is a 21 year old sophomore in college who was diagnosed with Cystinosis at the age of 4. Kacy has experienced a lifetime of medication to help treat her condition, and also anti-rejection medications in an effort to keep her donated kidney alive and well inside of her. Her father Tim was blessed with the opportunity to donate his right kidney to her in 2015.Kacy talks with our hosts about the side effects of her medication as well as the current events in her life and how she manages her condition. Together with her father Tim, they provide our listeners with how they have managed the disease as a family and how remaining hopeful and taking part in fellowship with others in the Cystinosis Research Network has been therapeutic. Listen along as our hosts discuss the turning points the family faced on their diagnostic journey, and hope for future treatments that may be available.