How a Pompe Disease Warrior Became the ‘SoCal Pompe Champ’ | Dwayne Wilson

Kimberly sits down with Dwayne Wilson, a powerhouse advocate living with Pompe disease, a rare genetic disorder that attacks muscles and breathing.Dwayne Wilson’s body was failing, but medicine called it "normal aging":​🔴 Doctors ignored his weak legs until he couldn’t climb stairs.​🟢 The poolside epiphany: "Water crushed my chest, it was Pompe disease."​🟣 169 infusions later: Why he calls treatment "muscle juice."Chapters00:00 Introduction to Chronic Truth Podcast01:33 Understanding Pompe Disease10:02 Finding Community and Support13:00 Becoming a Pompe Champ15:24 Using T-Shirts for Awareness20:15 Advice for Newly Diagnosed Patients23:31 Advocacy and Community EngagementConnect with Dwayne:📲 Follow Dwayne: ⁠⁠Instagram🩺 Pompe Info: ⁠⁠Pompe Disease NewsSubscribe to The Chronic Truth Podcast for more raw conversations about thriving beyond chronic illness.🔗 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Linktree⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠This episode is brought to you by:The Chronic Truth Podcast, LLCHost/Executive Producer: Kimberly NashCo-Producer / Editor: Jay Wilson - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠The Podcast Mechanic⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠