How is Europe preparing for secondary use of data in healthcare through EHDS?

Fidelia Cascini is Digital Healh expert engaged by the Italian Ministry of Health on European and national initiative. She recently wrote a book on secondary use of data in healthcare, read it here: Secondary Use of Electronic Health Data Public Health Perspectives, Use Cases and Challenges https://link.springer.com/book/10.100... This conversation covers the categorization of electronic health data, the importance of distinguishing different data types, and the potential applications and challenges in digital health. We also explore healthcare systems' digitalization, patient data privacy, the European Health Data Space (EHDS), and future public health perspectives. Learn about patient-generated data, clinical trials, and the significant role of digital health advancements in shaping the future of healthcare. www.facesofdigitalhealth.com Newsletter: https://fodh.substack.com/ Youtube: https://www.youtube.com/watch?v=tbSCXUhIDZ8 Show notes: 01:08 Diving into Different Categories of Health Data 01:35 Discussion on Secondary Use of Data in Europe 02:16 Call for Listener Feedback 03:07 Starting the Interview with Felia Kini 03:36 Importance of Distinguishing Data Types 04:38 Challenges in Using Different Data Sources 06:38 Real-World vs. Clinical Trial Data 07:19 Patient Preferences and Medication Adherence 09:31 Most Suitable Data for Secondary Purposes 10:32 Patient Generated Health Data 11:53 Discussions Among Health Ministries 13:09 Trustworthiness and Integration of Digital Tools 17:45 Patient Reported Outcomes in EHRs 19:35 European Health Data Space (EHDS) 29:55 Patient Control Over Data 33:47 Barriers to EHDS Success 37:13 Public Health Perspectives and Global Changes 40:14 Conclusion and Future Perspectives 42:20 Closing Remarks and Upcoming Events