EPISODE · Sep 8, 2022 · 31 MIN
How these parents of a child with a rare disease are making precision medicine work for them
from pharmaphorum Podcast · host pharmaphorum
In today’s pharmaphorum podcast, editor in chief Jonah Comstock invites Drs Zachary and Geri Landman to tell their daughter Lucy’s story and the story of their new nonprofit Moonshots for Unicorns, which sets up a framework for parents in their circumstance to directly crowdfund research for rare single-gene disorders – starting with PGAP3.
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How these parents of a child with a rare disease are making precision medicine work for them
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