How to Become a Self-Learner: Life Experience From Jorge de la Riva

We explore how to become a self-learner in hemophilia, from adherence and refills to evaluating factor, non-factor, and gene therapies. Jorge shares candid lessons on transition to adulthood, community support, and choosing treatments that fit real life.• Why ownership of care decisions matters• Adherence as daily practice and mindset• Planning refills and emergency doses with pharmacy• Signals it may be time to review medication• Comparing standard, extended, non-factor and gene therapy• Using lifestyle fit as a decision lens• Learning at chapter and national events• Guidance and hope for newly diagnosed families• Building a comprehensive support networkBe part of the conversation at Emerging Therapies, February 24–25. Register now at hopeforhemophilia.org/emerging-therapiesSupport the show