EPISODE · Mar 3, 2024 · 12 MIN
How To Combat Medical Ignorance Of Rare Diseases
from In Good Health · host Greg Johnson, Elizabeth Westfield, Maayan Voss de Bettancourt | AURN
Having a rare disease means that not all doctors will know how to treat you. For Christyn Taylor’s daughter, who was diagnosed with pediatric pancreatitis at age 7, this meant countless physicians who either didn’t believe she had the condition or knew nothing about it – factors that continually worsened her illness. To help other families in similar situations, Taylor created a document that gives patients with rare diseases a credible back-up of medical history and current treatment plans when dealing with stubborn physicians.Learn More: https://radiohealthjournal.org/how-to-combat-medical-ignorance-of-rare-diseases Facebook: ingoodhealthpodX: @ ingoodhealthpodIG: @ingoodhealthpodYouTube: @ingoodhealthpodSpotify Apple Podcast In Good Health PodcastSubscribed to the newsletterFull ArchiveContact UsBecome an Affiliate Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Embed this episode
What this episode covers
Having a rare disease means that not all doctors will know how to treat you. For Christyn Taylor’s daughter, who was diagnosed with pediatric pancreatitis at age 7, this meant countless physicians who either didn’t believe she had the condition or knew nothing about it – factors that continually worsened her illness. To help other families in similar situations, Taylor created a document that gives patients with rare diseases a credible back-up of medical history and current treatment plans when dealing with stubborn physicians. Learn More: https://radiohealthjournal.org/how-to-combat-medical-ignorance-of-rare-diseases
NOW PLAYING
How To Combat Medical Ignorance Of Rare Diseases
No transcript for this episode yet
Similar Episodes
Feb 11, 2026 ·45m
Similar Podcasts
No similar podcasts found.