EPISODE · May 27, 2026 · 41 MIN
Huntington’s Disease Caregiver Guide: What to Expect and How to Cope - EP 200
from Caregiver Relief Podcast · host Caregiver Relief
In this episode of the Caregiver Relief podcast, host Diane Carbo sits down with advocate and author Lori Jones to discuss the heavy, complex realities of Huntington’s Disease (HD). Lori shares her deeply personal story of living at risk, the hidden hurdles of genetic testing, and what she learned while navigating a decade of care for her father across nine different adult care facilities.https://www.caregiverrelief.com/huntingtons-disease-caregiver-guide-what-to-expect-and-how-to-cope-with-lori-jones-episode-200Tune in to learn how psychiatric symptoms can predate physical ones by a decade, how to handle an uncooperative senior in crisis, and how Lori ultimately overcame survivor's guilt to find her purpose as a voice for the HD community.If this episode speaks to you, please take a moment to rate, review, and share it to help us support caregivers worldwide!
What this episode covers
In this episode of the Caregiver Relief podcast, host Diane Carbo sits down with advocate and author Lori Jones to discuss the heavy, complex realities of Huntington’s Disease (HD). Lori shares her deeply personal story of living at risk, the hidden hurdles of genetic testing, and what she learned while navigating a decade of care for her father across nine different adult care facilities.https://www.caregiverrelief.com/huntingtons-disease-caregiver-guide-what-to-expect-and-how-to-cope-with-lori-jones-episode-200Tune in to learn how psychiatric symptoms can predate physical ones by a decade, how to handle an uncooperative senior in crisis, and how Lori ultimately overcame survivor's guilt to find her purpose as a voice for the HD community.If this episode speaks to you, please take a moment to rate, review, and share it to help us support caregivers worldwide!
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Huntington’s Disease Caregiver Guide: What to Expect and How to Cope - EP 200
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