Huntington’s Disease Caregiver Guide: What to Expect and How to Cope - EP 200 episode artwork

EPISODE · May 27, 2026 · 41 MIN

Huntington’s Disease Caregiver Guide: What to Expect and How to Cope - EP 200

from Caregiver Relief Podcast · host Caregiver Relief

In this episode of the Caregiver Relief podcast, host Diane Carbo sits down with advocate and author Lori Jones to discuss the heavy, complex realities of Huntington’s Disease (HD). Lori shares her deeply personal story of living at risk, the hidden hurdles of genetic testing, and what she learned while navigating a decade of care for her father across nine different adult care facilities.https://www.caregiverrelief.com/huntingtons-disease-caregiver-guide-what-to-expect-and-how-to-cope-with-lori-jones-episode-200Tune in to learn how psychiatric symptoms can predate physical ones by a decade, how to handle an uncooperative senior in crisis, and how Lori ultimately overcame survivor's guilt to find her purpose as a voice for the HD community.If this episode speaks to you, please take a moment to rate, review, and share it to help us support caregivers worldwide!

In this episode of the Caregiver Relief podcast, host Diane Carbo sits down with advocate and author Lori Jones to discuss the heavy, complex realities of Huntington’s Disease (HD). Lori shares her deeply personal story of living at risk, the hidden hurdles of genetic testing, and what she learned while navigating a decade of care for her father across nine different adult care facilities.https://www.caregiverrelief.com/huntingtons-disease-caregiver-guide-what-to-expect-and-how-to-cope-with-lori-jones-episode-200Tune in to learn how psychiatric symptoms can predate physical ones by a decade, how to handle an uncooperative senior in crisis, and how Lori ultimately overcame survivor's guilt to find her purpose as a voice for the HD community.If this episode speaks to you, please take a moment to rate, review, and share it to help us support caregivers worldwide!

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Huntington’s Disease Caregiver Guide: What to Expect and How to Cope - EP 200

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This episode is 41 minutes long.

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This episode was published on May 27, 2026.

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In this episode of the Caregiver Relief podcast, host Diane Carbo sits down with advocate and author Lori Jones to discuss the heavy, complex realities of Huntington’s Disease (HD). Lori shares her deeply personal story of living at risk, the hidden...

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