I am not a cancer sufferer with Carmen Monge, Author & Hodgkin's Lymphoma Survivor

Live from Chicago, join us for this special edition instalment of Candidly With Carolyn where we welcome Carmen Monge - Author, Researcher & Globe Trotting Cancer Patient Advocate on to the pod to hangout. They meet in the lobby of their hotel in Chicago and catch their breath after hurriedly getting ready from one conference event to another. Pour yourself a cup of your favourite coffee, hit that play button and hang out with Carolyn and Carmen as they walk-and-talk about accessibility in cancer care, biases and blindspots in research design, delivery and communication, ethnicity, reclaiming and authoring our identities and patient-informed language around cancer.(00:35)-Welcome To This Hangout!(05:00)-Accessibility of New Treatments.(06:34)-Collaboration. Let's Not Start From Scratch. (07:48)-Cultural Considerations. The Seemingly Little Things Make A Difference.(09:40)-Neurodiversity Is Often Overlooked.(11:40)-The Less Visible Human-Factors.(12:50)-Asia, Beyond India. (14:20)-Biases In Research Leadership And Design.(14:50)-I Grew Up Thinking I Was White. How Racism and Imperialism Can Impact Identity.(16:35)-Admiring the LGBTQIA Community. (21:10)-Who Authored? Who Got To Author? And Who Gets To, Moving Forward?(23:33)-Patients Informing & Authoring Cancer Communications. (25:10)-Are We Headed In The Right Direction? (26:45)-"They Lost The Battle To Cancer" is....ick. (29:40)-Can-Can And The Adventure of Ming Island. (30:50)-Lets Get Better At Facing And Talking About Cancer. ______________________Learn more about Carmen's children's book Can-Can and The Adventure of Ming Island ⁠here⁠.What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode. Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found. Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠__The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.