I Am Still Me: A Conversation with Joanne Delo |Episode 115

Navigating Life's Challenges: A Conversation with Joanne Delo Discover insights on resilience and support in neurological care. In this heartfelt episode of the Mic Drop Club, Douglas Hamandishe reconnects with trailblazer Joanne Delo, whose journey has been shaped by her experiences with the Kent Neurotherapy Centre. Their conversation delves deep into the themes of resilience, community, and the importance of support for those affected by neurological conditions. The Power of Connection Joanne reflects on the serendipitous nature of their relationship, emphasising how vital face-to-face connections are in networking. "Being able to drill down to those connections and meet those connections face to face, that's what networking is all about," she shares. This genuine connection sets the tone for a meaningful discussion about the challenges faced by those living with neurological diseases. A Beacon of Hope Joanne serves as a trustee of the Kent Neurotherapy Centre, an independent charity that provides support for individuals with multiple sclerosis, Parkinson’s, stroke, and other neurological conditions. "It's a real beacon of hope in Canterbury," she explains. The Centre relies on public funds and donations, highlighting the community's role in keeping this vital resource alive. Her personal connection to the Centre is deeply rooted; her husband has primary progressive MS, which has shaped their lives significantly. "It just brought me even closer to the centre because that's another thing about the centre. It brings people together in a safe environment," she reflects. Challenges and Governance The conversation shifts to the governance of the Centre, where Joanne emphasises the importance of lived experience among the trustees. "We've all got that close connection," she says, underlining how this shared understanding informs their approach to decision-making. The Centre strives to maintain its founding values while adapting to meet the growing needs of its community. Joanne also tackles the complexities of balancing proactive and reactive care within the charity sector. "It's that balancing act of being proactive versus reactive. The NHS is extremely reactive; it’s the nature of what it is," she notes, advocating for the importance of early intervention in neurological care. Embracing Life on Good Days Despite the challenges, Joanne encourages embracing life on good days. "It's about trying to focus on those positives," she says, sharing her own experiences with hydrotherapy and the importance of finding joy in small victories. This conversation is not just a discussion about healthcare; it's a testament to the human spirit's resilience and the power of community support in navigating life's challenges. Joanne’s insights invite us to reflect on our own connections and the ways we can support those around us. To hear more of this inspiring discussion, tune into the full episode with Joanne Delo on the Mic Drop Club.