I Used AI for My Chronic Illness for a Year. Here's What Went Wrong. (Tjasa Zajc, Agentic Patient)

The Agentic Patient is here — and most healthcare systems don't have a plan for it. In this special reverse-role episode of Faces of Digital Health, Eric Sutherland interviews host Tjaša Zajc about what a year of using AI through her own chronic illness has actually taught her about patients, doctors, and the future of healthcare AI. 200 million people will ask ChatGPT a health question this week. The question is no longer whether patients will use AI to navigate their care — it's how to help them do it well, without harm, and in productive partnership with their clinicians. In this episode: - Why "patients know best" breaks down for chronic patients - The three archetypes AI is creating: minimizers, cyberchondriacs, and informed collaborators - What happens when doctors dismiss patients who use AI - A two-model verification method for cross-checking medical AI advice - Why "digital literacy" is the wrong name for the most important skill in modern healthcare - Two prompts that genuinely change what AI gives you back - What health ministries should actually do — and why we shouldn't offload patient AI education to doctors ⏱ CHAPTERS 00:00 Intro & reverse-role experiment 01:00 Eric Sutherland: "a data guy with personality" 01:36 A year as a chronic patient using AI 02:50 Same prompt, different LLMs — the trust problem 04:30 How The Agentic Patient series was born 06:00 Three patient archetypes 09:00 When doctors dismiss AI, patients start hiding 12:30 Dale Atkinson, HIMSS Europe, and data outside the clinic 13:30 200M weekly ChatGPT health queries — who's accountable? 15:30 The two-model cross-verification method 17:00 Making 7-minute appointments work with AI 19:30 Finland's Elements of AI — a model for healthcare 22:00 Why chronic patients may not know best 24:30 Five minutes with a health minister 27:00 Two prompts that change AI outputs 30:00 The agentic patient is a survivor, not a tech enthusiast 🎙 ABOUT THE AGENTIC PATIENT The Agentic Patient is a series under Faces of Digital Health exploring how patients and clinicians are actually using AI in healthcare — the wins, the harms, and the best practices emerging across cancer care, chronic disease, and primary care. 🔗 LINKS Newsletter: https://fodh.substack.com/p/the-agentic-patients-are-here More episodes: https://www.facesofdigitalhealth.com/agentic-patient-blog Tjaša Zajc on LinkedIn: https://www.linkedin.com/in/tjasazajc/ Eric Sutherland on LinkedIn: https://www.linkedin.com/in/esutherland272/?skipRedirect=true #AgenticPatient #AIinHealthcare #DigitalHealth #FacesOfDigitalHealth #HealthcareAI #ChatGPT #PatientEmpowerment #ChronicIllness #AIliteracy #MedicalAI #PatientAdvocacy #DigitalTransformation