Im Aziel

My name is Aziel. I’m 23. I’m transgender and I have a neuromuscular disease called spinal muscular atrophy type two. Basically means that my brain doesn’t sing the signals for my body to do certain things like walk, roll over on my side you know simple things that a lot of people don’t typically think about they just do. Because of my neuromuscular disease it means I require a lot of care and because my family is older they’re able to care for me in the home without 244/7 care but once you turn 21 you lose that and you go to only 76 hours or less a week. So I live in a nursing home, unless I can find a caregiver that’s willing to be my caregiver full-time I have to live here. Living in a nursing home also means that I don’t have much money to myself at all. I only get to keep $30 of my SSI every month. Unless someone sends money to my Cash app, which isn’t a lot, but when I do get some, it does help me get what I need.