EPISODE · Aug 28, 2025 · 15 MIN
Important Update with HD-PACE
from Help 4 HD Live! · host Help 4 HD Live!
We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback. |Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 📊 Once we have enough responses, results will be shared publicly at www.hdpace.org. Your voice matters! Please take the survey and share it with others in the HD community. #HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE 🔗 Take the survey here.
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Important Update with HD-PACE
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