Important Update with HD-PACE - Help 4 HD Live!

What this episode covers

We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback. |Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 📊 Once we have enough responses, results will be shared publicly at www.hdpace.org. Your voice matters! Please take the survey and share it with others in the HD community. #HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE 🔗 Take the survey here.

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Frequently Asked Questions

How long is this episode of Help 4 HD Live!?

This episode is 15 minutes long.

When was this Help 4 HD Live! episode published?

This episode was published on August 28, 2025.

What is this episode about?

We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback. |Your feedback can help improve...

Can I download this Help 4 HD Live! episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.