Improving Quality of Life and Care in Lennox-Gastaut Syndrome: Best Practices for Collaborative, Family- and Patient-Centered Management

Lennox-Gastaut syndrome (LGS) affects every aspect of patients’ and caregivers’ lives, often far beyond seizures alone. Families face a fragmented system, where pediatric and adult care are poorly aligned, social services are hard to navigate, and long-term planning is unsupported. Younger patients with LGS are frequently misunderstood in emergency and school settings, while older patients may experience isolation and lack of access to appropriate adult services. These gaps contribute to caregiver fatigue, emotional distress, and a loss of confidence in support systems. Clinicians and multidisciplinary care teams require best-in-class education to address these gaps, meet the early and lifelong needs of individuals with LGS, and restore confidence in care.In this CME Outfitters recorded webcast, expert faculty will explore comorbidities and quality-of-life concerns that impact individuals with LGS and their caregivers. The activity will highlight team-based strategies to support long-term planning and successful transitions from pediatric to adult care.Learn More Here