Informed Consent in the Age of Big Data

How much responsibility should people really bear in the big data realm? Does informed consent equate to waiving rights? Is it realistic that they understand how data travels and is there an incorrect underlying assumption that data is their priority when they are consenting to its collection or use? In this podcast, we will examine the reasons people sign consent forms (to access care or information), the limited ability of informed consent to protect people from hacking and cybersecurity breaches, and its irrelevance to compensating people whose data is aggregated, sold, and resold. We will explore the limitations of informed consent in governing data collection and use in the healthcare arena. Speakers: Anne Zimmerman, Founder, Modern Bioethics Kacy Zurkus, Content Strategist, RSAC