Inside a PANS Flare: A Child Explains What It Feels Like

What if the behaviors everyone sees aren't choices at all, but signs of a brain under siege? In this episode of Demystifying PANS/PANDAS, Dr. Nancy O'Hara speaks with ten-year-old Aiden and his mother about living through PANS, the loss of control it brings, and what helped them finally find clarity, compassion, and a path forward.- - - - -About the Guest:Aiden is a ten-year-old living with PANS who courageously shares his personal experience to raise awareness and understanding. After years of misdiagnosis, Aiden is now participating in a research study involving IVIG therapy and continues to navigate recovery with insight far beyond his years.Outside of his health journey, Aiden is the founder of Bottle Caps Are Cool, a business creating NFC-enabled bottle cap charms, with a portion of proceeds supporting people experiencing homelessness. He is passionate about helping others, spreading awareness, and reminding adults that behavior is not always a choice.Website: https://www.bottlecapsarecool.com/Facebook: https://www.facebook.com/profile.php?id=61556882294755Instagram: https://www.instagram.com/tap_caps/LinkedIn: https://www.linkedin.com/in/aiden-newman-852a4340/ - - - - -Nancy O’Hara, MD, MPH, FAAP, FMAPSWebsite: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.drohara.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.facebook.com/drnancyohara/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/nhoharamd/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.linkedin.com/in/nancy-o-hara-md-mph-faap-390781258/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠- - - - -PODCASTThank you for listening.Please subscribe and share.This podcast is produced by DrTalks.comhttps://drtalks.com/podcast-service/