EPISODE · Mar 24, 2026 · 8 MIN
Inside Rare Disease Week: Taking Advocacy to Capitol Hill (Part 2), Ep. 30
from The Fine, But Not Fine Podcast · host Fine, But Not Fine
In Part 2 of my Rare Disease Week experience, I take you inside what it’s actually like meeting with lawmakers and their staff on Capitol Hill. I talk about how patient stories influence policy, how advocacy conversations unfold, and why showing up matters for the rare disease community.
What this episode covers
In Part 2 of my Rare Disease Week experience, I take you inside what it’s actually like meeting with lawmakers and their staff on Capitol Hill. I talk about how patient stories influence policy, how advocacy conversations unfold, and why showing up matters for the rare disease community.
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Inside Rare Disease Week: Taking Advocacy to Capitol Hill (Part 2), Ep. 30
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