Interview with Beth Vanstone - Rare Disease Advocate

Send us Fan MailWhen Beth Vanstone’s daughter Madi was diagnosed with cystic fibrosis as a baby, she was thrust into a world of uncertainty, medical complexity, and urgent decisions. In this powerful episode of Bradford Banter, Beth shares how her family’s personal journey led to a national fight for access to life-saving treatments—not just for Madi, but for thousands of Canadians living with rare diseases.We talk about the barriers families face in our healthcare system, the years-long battle to get vital drugs approved and publicly funded, and the toll it takes when time is not on your side. Beth also opens up about what keeps her going, what still needs to change, and why no family should ever have to fight this hard to access care.This is an eye-opening, deeply human conversation about resilience, reform, and the power of a mother’s voice.Links to learn more:Cystic Fibrosis CanadaProvincial Action GroupEmail for Beth Vanstone: [email protected] Support the showDisclaimer: Bradford Banter PodcastThe views, thoughts, and opinions expressed on the Bradford Banter Podcast are those of the hosts and guests and do not necessarily reflect the official policy or position of any affiliated organizations, employers, or sponsors.All content provided on this podcast is for entertainment and informational purposes only. The hosts and producers make no representations as to the accuracy or completeness of any information shared and will not be liable for any errors or omissions, or for any losses, injuries, or damages arising from its use.Listener discretion is advised. Some episodes may contain language or themes not suitable for all audiences.By listening to this podcast, you agree not to hold the hosts or guests liable for any offense caused or decisions made based on the content discussed.