Invisible Illness, Misdiagnosis and the Power of Patient Advocacy with Tilly Rose

What happens when you spend years being dismissed, misdiagnosed, and treated as a medical mystery?In this episode of Owning Space, Aneka is joined by author and patient advocate Tilly Rose to talk about invisible illness, systemic failure in healthcare, and the power of patient advocacy.After living with complex, multi-system symptoms for decades, Tilly was close to being discharged without a diagnosis. What followed was a turning point that changed everything, leading to life-saving answers, a global community, and a powerful new voice in women’s health.This conversation explores what it means to be unheard, the emotional toll of misdiagnosis, and how advocacy, persistence, and collective knowledge can save lives.A vital listen for anyone navigating chronic illness, medical gaslighting, or learning how to take up space within a system that too often overlooks women.Tilly’s book, Be Patient, is available here#WomensHealth #PatientAdvocacy #InvisibleIllness #ChronicIllness #MedicalGaslighting #Misdiagnosis #HealthcareInequality #PatientVoice #HealthJustice #BePatient #OwningSpacePodcast