Ireland Approves Lifesaving Drug for Rare Disease | Waterford News

Ireland just made a huge breakthrough for families battling Friedreich’s ataxia—officially approving funding for the life-changing drug Skyclarys after years of advocacy and tough price negotiations. Once priced at nearly 280,000 euro per patient annually, the drug is now accessible, offering hope to patients like Sinéad Maher’s husband, diagnosed 24 years ago, and her four kids who rely on his presence. Campaigners pushed hard, even staging a Dublin rally, stressing this isn’t a cure—but it buys precious time to keep living, loving, and connecting. This win proves what relentless advocacy can achieve. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/71d988c85af7dd3b