Ireland’s FA Patient Sues HSE Over Drug Delay | Dublin News

A young Irish woman with Friedreich’s ataxia is suing the Health Service Executive over delays in funding a life-changing drug, Skyclarys, which could slow her disease progression by 55%—but costs nearly €300,000 annually. After being sidelined for months and learning about the decision via social media, she calls the process insulting and devastating, as her condition worsens daily. With fewer than 200 people in Ireland living with FA, she’s not just fighting for herself—but for others who have no time to wait. Clinicians are rallying behind her, pushing for national access while the HSE says it’s still reviewing the case. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/c7406737e2ba074e