It is time to get ready for clinical trials, this is how. #S10e202

Thursday, March 26, 2026 - Week 13Thanks for NL50 Ed!  cureSYNGAP1.org/NL50,  I listened to Episode 1 and, as it turns out, it was March 12, 2021 (five 5️⃣ years ago), and it’s evergreen.SEVEN THINGS YOU NEED TO DO TO BE READY FOR CLINICAL TRIALS1. Stay Connected to CURE SYNGAP1Fill in the Connect Form https://lnkd.in/grjd-H9HHave an annual call with LaurenSubscribe to the CURE SYNGAP1 Podcast everywhere and to our YouTube. 2. Know your mutation, have your genetic report. Memorize it or get a tattoo.3. Sign up for our Natural History StudiesLooking forward: ProMMiS https://lnkd.in/gh7t4s52 (Also helps you figure out travel).Looking back: Citizen Health https://lnkd.in/gKxg33QT4. Participate in Research, get your mutation affirmed and published.Join the CB BioRepository https://lnkd.in/giFhaGmpGive samples early and often, like me last week: https://lnkd.in/gfqKzNZbDo Surveys5. Educate yourself, start with these two blogshttps://curesyngap1.org/blog/emerging-medicines-syngap1-related-disorders-primer-comparison-glossaryhttps://curesyngap1.org/blog/preparing-for-syngap1-clinical-trials-what-families-need-to-know6. Extra Credit: Collect your EEGsGet them from everywhere you have been (check Citizen to be sure).Keep them handy on a google drive… like this: https://lnkd.in/g4DfkKAU Upload them to the CB EEG Repository. Email Lauren for info.#S10e123 https://lnkd.in/gxAFEnip7. Super Extra Credit: If you have a missense, intronic or other weird mutation. We should make a cell line which will allow further study. These cost ~$10k each, so we need to do a fundraiser, but we can help.#S10e SPRINT FOR SYNGAP1, EVERYWHERE – 29 daysGet on the map!  https://curesyngap1.org/calendar/sprint4syngap-2026INAUGURAL SF NIGHT OF IMPACT, CA – 63 daysJoin us this is our only Gala for 2026!cureSYNGAP1.org/SF265TH SCRAMBLE FOR SYNGAP, SC – 191 days Classic case of a small event becoming an institution!cureSYNGAP1.org/Scramble26SYNGAP1 AwarenessMust watch this episode of Kelly and Kyle.  Careful with those ASMs that challenge bone growth… https://curesyngap1.org/bonesPUBMEDPubmed 2026 is at 18.  Some great papers, but will discuss later. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=dateSOCIAL MATTERS4,786 LinkedIn.  https://www.linkedin.com/company/curesyngap11,540 YouTube.  https://www.youtube.com/@CureSYNGAP111.1k Twitter https://twitter.com/cureSYNGAP145k Insta https://www.instagram.com/curesyngap1$CAMP stock is at $4.75 on 25 Mar. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQLike and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10Episode 202 of #Syngap10 #CureSYNGAP1 #Podcast