Jaclyn's Lost Labia Journey: Surviving Alone

Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you. This is the story of how Jaclyn began her Lichen Sclerosus journey with little information. While she had started to compile a team (i.e., her doctor, her sex therapist, her pelvic floor physiotherapist, her husband, friends, and family), she felt very alone in her diagnosis. She longed for community and connection. Come back next week to hear about how Jaclyn found her community and how she is now able to have amazing, pleasurable, pain-free sex! Join us at our next virtual meetup. We meet every other Saturday from 2-4 pm and/or 7-9 pm Eastern Standard Time. This is your opportunity to share your diagnosis story, what is working for you and what isn’t, and ask a question to the group. I have met so many incredibly strong LS warriors through these meetups, and I would love for you to join our community.  Sign up at https://lichensclerosuspodcast.com/connect for notifications and updates! Our next meetup is on March 6th. I cannot wait to meet you! Need immediate help email me at [email protected] or DM me on IG @lichenslcerosuspodcast. I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus Warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. I am super excited to announce that Jaclyn will be starting her blog called The Lost Labia Chronicles, sponsored by the LSSN, which will go live next Tuesday (March 2nd, 2021). Jaclyn is freaking amazing, and you will definitely want to follow her blog. I have watched this woman go through an amazing transformation, and her stories, her advice, and her wisdom are next level. In her blog she will take you through her journey, you will get all the raw, unfiltered emotions and feelings and learn how she got out of that dark space. Her story is one of hope. Subscribe to her blog at lssupport.net/jointllc to get updates and notifications. Her first blog post will go live on March 2nd, but if you sign up before, you’ll get a sneak peek at her first post. If you want to reach out to Jaclyn, you can DM her on Instagram or Facebook @thelostlabiachronicles or via email at [email protected].  Mentioned in this episode:Finally Get Clear Answers About LS, Menopause, and Your TreatmentIf you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.