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EPISODE · Aug 26, 2023 · 43 MIN

Jacqui Fish

from Staying Connected

Jacqui Fish, whose 24 year-old son George has vascular Ehlers-Danlos Syndrome (VEDS) shares her experience as mom and George’s experience with VEDS, including a number of serious medical events, including a bowel perforation, artery dissections, posterior reversible encephalopathy syndrome (PRES), and pneumothorax. Find more information about VEDS including support groups and medical webinars, at thevedsmovement.org Links mentioned in the episode: If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit https://calendly.com/d/z7h-2cc-g33 Real Talk: VEDS with Bella, the in_VEDS_tigator: https://youtube.com/live/X5KDA7N-a44?feature=share Flyer for NW GAAP Symposium at OHSU on Sept 19: https://staying-connected.blubrry.net/wp-content/uploads/2023/08/Aortic-Dissection-Day-2023-Flyer.pdf Registration: form.jotform.com/232205213035136 Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement: https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/ Join a Walk for Victory: https://marfan.org/walk/ The Ehlers-Danlos Society Genetically Defined EDS event in Ghent, Belgium: https://www.ehlers-danlos.com/event/genetically-defined-eds-strategies-solutions-for-unmet-needs/#tribe-tickets Support You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons: Jon Holtom Adventuresinlove4Andie Ryan Rodarmer Benjamin Weisman Fiona McIver

Episode metadata supplied by the publisher feed · Published Aug 26, 2023

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How long is this episode of Staying Connected?

This episode is 43 minutes long.

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This episode was published on August 26, 2023.

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