Jojo’s Story: Courage in the Face of Sanfilippo

Join us for an inspiring and deeply human conversation with Jessica Funderburk, devoted mom to Jolene, a beautiful girl living with Sanfilippo syndrome. Sanfilippo syndrome is a rare, inherited genetic condition that affects the body’s ability to break down and recycle complex sugar molecules, leading to progressive neurological decline and a host of physical and developmental challenges. While the journey can be overwhelming, Jessica’s story is one of unwavering love, fierce advocacy, and hope in the face of life’s hardest moments.In this episode, we walk alongside Jessica as she shares:✨ What life looks like raising a child with a rare, life-limiting condition✨ The everyday joys, struggles, and unimaginable love that define their family’s routine✨ How she finds strength in community, faith, and purpose✨ The importance of awareness, research, and connection for families affected by rare diseasesWhether you’re a caregiver, clinician, parent, or listener seeking a story of resilience, this episode celebrates the power of hope, the depth of a mother’s love, and the courage it takes to navigate the unknown.Learn more & connect with supportive communities:🔗 https://mpssociety.org🔗 https://rarediseases.org🔗 https://curesanfilippofoundation.orgTune in to be moved, encouraged, and reminded that even in the hardest journeys, love shines brightest.