Julie Flygare, ambassador for narcolepsy and sleep disorders episode artwork

EPISODE · Feb 20, 2022 · 31 MIN

Julie Flygare, ambassador for narcolepsy and sleep disorders

from The Health Design Podcast · host Moyez Jiwa

Julie Flygare, J.D., is a leading ambassador for narcolepsy and sleep, and a strong advocate for patient-centered research and the importance of social support. She is an accomplished speaker, Stanford Medicine X ePatient Scholar, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. As President & CEO of Project Sleep, Julie leads the organization’s patient-driven advocacy, awareness, and education programs. For over a decade, she has fostered a variety of successful collaborations including bringing together 29 patient advocacy organizations to co-lead World Narcolepsy Day and launching the Sleep Advocacy Forum to elevate the sleep community's profile on the national policy stage. Julie has lectured at numerous professional meetings across the U.S. and keynoted conferences in Ireland, Italy, Sweden, Australia, and the United Kingdom. She has co-authored papers in peer-reviewed publications and authored a chapter in a narcolepsy clinical textbook. Julie received her B.A. from Brown University and her J.D. from Boston College Law School focusing on health law and rare disease drug development. Wide Awake and Dreaming: A Memoir of Narcolepsy: Julie Flygare's website: http://julieflygare.com/ Project Sleep's website: https://project-sleep.com/ Project Sleep's Instagram: @project_sleep https://www.instagram.com/project_sleep/?hl=en Project Sleep's Facebook: https://www.facebook.com/ProjectSleepAwareness Project Sleep's Twitter: @project_sleep https://twitter.com/project_sleep Project Sleep's YouTube: https://www.youtube.com/c/Project-sleep

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