Karen Utley
from BoldMedicine Hosted by Ovid Therapeutics
Karen Utley, President and co-Founder of the International Foundation for CDKL5 Research speaks with Amit about what it's like to be a leader in the rare epilepsy community, and what matters most to families affected by CDKL5 Deficiency Disorder. What makes me hopeful are the advances in science. They are exciting. There are so many things that have happened in the 10 years that I’ve been in the rare disease world that I’m shocked myself. Also, the willingness for people to help. You can share your story with people who have no connection and they are moved by it. I believe our kids change people. - Karen Utley
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