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Key terms and definitions In porphyria

Professor Sverre Sandberg joins the podcast to di…

An episode of the JIMD Podcasts podcast, hosted by Journal of Inherited Metabolic Disease, titled "Key terms and definitions In porphyria" was published on May 26, 2023 and runs 18 minutes.

May 26, 2023 ·18m · JIMD Podcasts

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Professor Sverre Sandberg joins the podcast to discuss recent work looking to establish key terms and definitions in the acute porphyrias, and explains how this will ultimately help bring forward treatment and research. EPNet website: http://porphyria.eu Key Terms and Definitions in Acute Porphyrias: Results of an International Delphi Consensus Led by the European Porphyria Network Penelope E. Stein, et al https://doi.org/10.1002/jimd.12612

Professor Sverre Sandberg joins the podcast to discuss recent work looking to establish key terms and definitions in the acute porphyrias, and explains how this will ultimately help bring forward treatment and research. EPNet website: http://porphyria.eu Key Terms and Definitions in Acute Porphyrias: Results of an International Delphi Consensus Led by the European Porphyria Network Penelope E. Stein, et al https://doi.org/10.1002/jimd.12612

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