Křehká „papírová“ kůže i hrozící trhání orgánů. Vzácnou nemoc EDS Tomáš zjistil až ve 30 letech

Na konci února si svět připomněl Světový den vzácných onemocnění. Existuje jich přes šest tisíc. V Česku má nevšední diagnózu asi půl milionu lidí. Je mezi nimi i Tomáš Jaroš z Brněnska, u kterého nedávno testy odhalily Ehlersův-Danlosův syndrom. Při zátěži může pacientům praskat kůže i orgány.Všechny díly podcastu Magazín Experiment můžete pohodlně poslouchat v mobilní aplikaci mujRozhlas pro Android a iOS nebo na webu mujRozhlas.cz.

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Křehká „papírová“ kůže i hrozící trhání orgánů. Vzácnou nemoc EDS Tomáš zjistil až ve 30 letech

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