Lea Storry - Grief is Like a Backpack episode artwork

EPISODE · Jan 31, 2026 · 1H 1M

Lea Storry - Grief is Like a Backpack

from originALS: more than ALS · host Flynn Mason & Hayley King

Send us Fan Mail"When you're caring for somebody living with ALS, it's going to be tough. You can't imagine it. You can't explain it. But being there for the person after they're gone, it'll mean the world to you."Lea Storry, believe it or not, tells stories for a living. An accomplished writer, journalist, and CALI graduate, Lea’s life was profoundly shaped by her experiences with ALS through the diagnoses of her mother, Shela, and her close friend, Pauline. Those experiences led her to create Speaking ALS: An Anthology, a collaborative writing project that amplifies the untold stories of the ALS community. Join us for a conversation spanning grief, love, science, accessibility, support, and the power of storytelling through Speaking ALS.To support Speaking ALS: An Anthology, visit ourfamilylines.ca/speakingalsFor more information on the Carey Me Fund, visit vrhfoundation.ca/carey-me For more information on the International ALS/MND Symposium, visit https://www.als-mnd.org/For more information on ALS, please visit the ALS Canada website at https://als.ca/Episode Transcript

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How long is this episode of originALS: more than ALS?

This episode is 1 hour and 1 minute long.

When was this originALS: more than ALS episode published?

This episode was published on January 31, 2026.

What is this episode about?

Send us Fan Mail"When you're caring for somebody living with ALS, it's going to be tough. You can't imagine it. You can't explain it. But being there for the person after they're gone, it'll mean the world to you."Lea Storry, believe it or not,...

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