EPISODE · Jan 13, 2020 · 20 MIN
Learning How to See Differently: An Interview with Kristin Smedley, President of the Curing Retinal Blindness Foundation
from WCG Talks Trials · host WCG
In this episode, Kristin Smedley sits down with President of WCG Patient Advocacy, Steve Smith, to talk about the journey her two children with retinal blindness have experienced. Known as the “happiest mom of two blind kids” and a powerful TEDx talker, Kristin highlights the CRB1 rare genetic degenerative disease both of her boys are affected with. She underscores the importance of genetic diagnosis and shares the impact clinical trials and patient advocacy groups have had in finding a cure for this disease.
What this episode covers
In this episode, Kristin Smedley sits down with President of WCG Patient Advocacy, Steve Smith, to talk about the journey her two children with retinal blindness have experienced. Known as the “happiest mom of two blind kids” and a powerful TEDx talker, Kristin highlights the CRB1 rare genetic degenerative disease both of her boys are affected with. She underscores the importance of genetic diagnosis and shares the impact clinical trials and patient advocacy groups have had in finding a cure ...
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Learning How to See Differently: An Interview with Kristin Smedley, President of the Curing Retinal Blindness Foundation
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