Legs Like Mine the Podcast Episode 40: Lipedema on the National State

I'm pretty excited today! In this update, we share a major national development that could reshape the future of care, research, and awareness for lipedema and other lymphatic diseases: the work of the National Commission on Lymphatic Diseases.Established through federal legislation in 2022 after years of advocacy led by organizations like LE&RN and patient groups, this Commission has brought together experts, researchers, and patient representatives to address critical gaps in diagnosis, treatment, education, and research. After more than 70 meetings and input from over 200 stakeholders, the Commission has now presented its report to the NIH, outlining key recommendations that could drive meaningful progress nationwide.This milestone reflects the power of sustained advocacy, and what’s possible when our community works together. While there is no immediate action required, future engagement will be essential as Congress reviews these recommendations. Links: Government Request for Information from 2024: https://grants.nih.gov/grants/guide/notice-files/NOT-HL-24-014.htmlNational Commission on Lymphatic Diseases: https://www.nhlbi.nih.gov/advisory-and-peer-review-committees/national-commission-lymphatic-diseasesLymphatic Education & Research Network: https://lymphaticnetwork.org/news-events/lern-national-lymphatic-commission