Legs LikeMine: The Podcast Episode 13: Doctors Still Don’t Know Lipedema Exists! episode artwork

EPISODE · May 23, 2025 · 5 MIN

Legs LikeMine: The Podcast Episode 13: Doctors Still Don’t Know Lipedema Exists!

from Legs Like Mine: The Podcast · host Susan O’Hara

🎧 Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition.📌 In this episode:We’re diving into one of the most important issues facing the lipedema community today — the alarming lack of awareness among medical professionals. We break down the newly published study:📝 “Lipedema awareness and knowledge level among medical doctors in Turkey: A cross-sectional study”📚 Read the study here: https://pubmed.ncbi.nlm.nih.gov/40177931/This research reveals that more than half of surveyed doctors had never even heard of lipedema — a chronic, painful fat disorder that affects millions of women. And if that’s happening in Turkey, you can bet it’s happening elsewhere too.Host Susan O’Hara shares her personal story of navigating the medical system alone — from getting diagnosed to coordinating her own surgery and recovery — because no one else was guiding the process.🔥 Key topics in this episode:Why so many doctors still don’t know about lipedemaThe diagnosis and treatment gap exposed by new researchHow patients are forced to "cobble together" their own careWhat needs to change in medical education and clinical careHow YOU can advocate for better awareness and support📣 CALL TO ACTION:Visit https://www.AmericanLipedemaAssociation.org to learn how to educate your providers, support national advocacy, and get involved in pushing for full-spectrum lipedema care.🩵 We deserve to be seen. We deserve to be treated. Let’s raise our voices together.🔔 Don’t forget to like, comment, and subscribe for more research breakdowns, real patient stories, and advocacy tools.Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

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Legs LikeMine: The Podcast Episode 13: Doctors Still Don’t Know Lipedema Exists!

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