LegsLikeMine The Podcast: Episode 34 - Why ICD-10 Codes for Lipedema Can't Wait

Take action: Email the CDC at ⁠[email protected]⁠ before October 9, 2025 to support the initiative — and ask ten friends or supporters to do the same. Together, our voices can make a lasting impact.Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition.In this episode, we dive into why ICD-10 codes for lipedema are so urgently needed in the United States. While some argue that ICD-11 will solve the problem eventually, the reality is that the U.S. has no timeline for adopting ICD-11 — leaving patients invisible in the healthcare system.We’ll cover why diagnosis codes matter for tracking prevalence, ensuring consistency, and building the knowledge bases that guide clinical care. You’ll also hear why “waiting for ICD-11” is not an acceptable answer for patients today.Take action: Email the CDC at [email protected] before October 9, 2025 to support the initiative — and ask ten friends or supporters to do the same. Together, our voices can make a lasting impact.