Let’s Shine a Light on Rare Diseases: Cri du Chat episode artwork

EPISODE · Jan 27, 2021 · 32 MIN

Let’s Shine a Light on Rare Diseases: Cri du Chat

from Brave Together Podcast: Support and Community for Caregiving Parents · host Jessica Patay

In this second Rare Diseases Highlight, Jessica Patay speaks with Leah Moore, mother of Jordan, who has Cri du Chat, a rare genetic disorder cause by a partial chromosome deletion.  Its name is a French term ("call of the cat") referring to the characteristic cat-like cry of affected children.  Leah is a high school educator and mother of three, and and in this episode, she vulnerably and hopefully shares the story of her family. You can find Leah's writing on lovingyoubig.com and find her on Instagram @lovingyoubig. Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. JOIN the international community of We Are Brave Together here. Donate to support all of We Are Brave Together's programs and offerings here. Can’t get enough of the Brave Together Podcast? Follow us on Instagram , Facebook and Youtube. Feel free to contact Jessica Patay via email: [email protected] If you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!Disclaimer

Episode metadata supplied by the publisher feed · Published Jan 27, 2021

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In this second Rare Diseases Highlight, Jessica Patay speaks with Leah Moore, mother of Jordan, who has Cri du Chat, a rare genetic disorder cause by a partial chromosome deletion. Its name is a French term ("call of the cat") referring to the characteristic cat-like cry of affected children. Leah is a high school educator and mother of three, and and in this episode, she vulnerably and hopefully shares the story of her family. You can find Leah's writing on lovingyoubig.com and f...

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Let’s Shine a Light on Rare Diseases: Cri du Chat

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This episode was published on January 27, 2021.

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