Let’s Shine a Light on Rare Diseases: Epidermolysis Bullosa

In the months ahead, Jessica Patay will occasionally pause the regular podcast series to highlight lesser known and uncommon diseases. In today’s Rare Disease highlight, we meet Nadine and Becky, moms of children with Epidermolysis Bullosa. EB is an incredibly rare group of genetic conditions that can result in easy blistering and damage of someone’s skin; blisters and painful injury occurs with very minor trauma or friction at any point of contact, and EB’s severity can range from mild to fatal. Nadine and Becky vulnerably share their stories, and about what life is like for their children, and their openness, compassion, and hope in the face of extreme hardship and heartbreak is not to be missed.Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. JOIN the international community of We Are Brave Together here. Donate to support all of We Are Brave Together's programs and offerings here. Can’t get enough of the Brave Together Podcast? Follow us on Instagram , Facebook and Youtube. Feel free to contact Jessica Patay via email: [email protected] If you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!Disclaimer