Let's Shine a Light on Rare Diseases: Mowat-Wilson Syndrome

This week, we are continuing our series shining a light on rare diseases. This week, we hear from Jodie Hughes and her beautiful daughter, Jadynne, who is six years old and diagnosed with Mowat-Wilson Syndrome, an incredibly rare condition. What is a rare disease? In the US, it is defined as a condition that affects fewer than 200,000 people. Research is often lacking, and it can take years for a family to get a correct diagnosis. The National Institutes of Health (NIH) states there are more than 7,000 rare diseases, and that number is growing.Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. JOIN the international community of We Are Brave Together here. Donate to support all of We Are Brave Together's programs and offerings here. Can’t get enough of the Brave Together Podcast? Follow us on Instagram , Facebook and Youtube. Feel free to contact Jessica Patay via email: [email protected] If you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!Disclaimer