Let’s Shine a Light on Rare Diseases: When it's My Fault

We continue our series Shine a Light on Rare Diseases, and this week we speak to Madeline Cheney @the_rare_life about her adorable son, Kimball, and about living with grief and guilt as a mother and genetic carrier. Madeline is the leader of the Utah @wearebravetogether support group, so please do reach out if you live in the area and want to join the community. She is also the creator and host of The Rare Life, a podcast about parenting children with rare medical conditions. Her gracious, vulnerable words will inspire and comfort any mother carrying similar questions; you are not alone!Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. JOIN the international community of We Are Brave Together here. Donate to support all of We Are Brave Together's programs and offerings here. Can’t get enough of the Brave Together Podcast? Follow us on Instagram , Facebook and Youtube. Feel free to contact Jessica Patay via email: [email protected] If you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!Disclaimer