Let's Talk Ehlers Danlos Syndrome episode artwork

EPISODE · Apr 26, 2021 · 25 MIN

Let's Talk Ehlers Danlos Syndrome

from The Spoonie Struggle · host Jessica Temple

Episode 4: Let's Talk Ehlers Danlos Syndrome In this episode, we discuss all things Ehlers Danlos Syndrome. EDS is a group of usually inherited connective tissue disorders characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Symptoms vary, but can include widespread joint and muscle pain, walking difficulty, dislocations and subluxations, poor wound healing, problems with the GI system, heart, dysautonomia, headaches, mouth symptoms, sleep, and much much much more. Diagnosis is tough but is sometimes made via genetic testing or clinical symptoms. Treatment varies depending on the symptoms and the clinical manifestations. Links: EDS Helpline EDS Videos Community Resources Loose Connections Magazine Facebook Group EDS Virtual Support EDS Diagnostic Checklist Website Facebook Instagram Email Twitter Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Hosted by: Jessica Temple  Music by Antarcticbreeze Music Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment. Copyright 2021 Jessica Temple

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Let's Talk Ehlers Danlos Syndrome

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