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EPISODE · Jan 30, 2025 · 48 MIN

Life with Multiple Diagnosis

from CTNNB1 Connect and Cure · host Annie

So many of our kids have a common connection, CTNNB1, but many of our kids have more than just CTNNB1.  I interview Kelley Merwin about her son's multiple diagnosis and what she does for self-care.  Kelley talks about the process she went through to find her son's diagnosis and also how his other diagnosis have come into play with caring for her son.  Take a listen as Kelley shares the story of how she manages her son's needs and also her own.   https://www.curectnnb1.org/#raredisease#syndrome

Episode metadata supplied by the publisher feed · Published Jan 30, 2025

What this episode covers

So many of our kids have a common connection, CTNNB1, but many of our kids have more than just CTNNB1. I interview Kelley Merwin about her son's multiple diagnosis and what she does for self-care. Kelley talks about the process she went through to find her son's diagnosis and also how his other diagnosis have come into play with caring for her son. Take a listen as Kelley shares the story of how she manages her son's needs and also her own. https://www.curectnnb...

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Life with Multiple Diagnosis

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How long is this episode of CTNNB1 Connect and Cure?

This episode is 48 minutes long.

When was this CTNNB1 Connect and Cure episode published?

This episode was published on January 30, 2025.

What is this episode about?

So many of our kids have a common connection, CTNNB1, but many of our kids have more than just CTNNB1.  I interview Kelley Merwin about her son's multiple diagnosis and what she does for self-care.  Kelley talks about the process she went through to...

Can I download this CTNNB1 Connect and Cure episode?

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