Life with Non-ketotic Hyperglycinemia (NKH) - A Rare Degenerative Genetic Disorder

In this powerful episode of the "Moms Like Me" podcast, Julia Erman shares her extraordinary journey of raising two children with a rare, degenerative genetic disorder, non-ketotic hyperglycinemia (NKH), while battling cancer herself. Julia opens up about the highs and lows, from her children defying medical odds to finding strength and purpose in the face of suffering. She reflects on faith, community, and the hard-earned joy that comes from embracing life's challenges. Julia also discusses the impact of social media on her journey, the founding of the Hazelnut Movement, and her commitment to inspiring others. Her story is a testament to resilience, faith, and the profound strength of a mother’s love. Key Highlights: - Julia's journey as a mom of two children with a rare genetic disorder. - Her personal battle with cervical cancer during pregnancy. - Insights on finding joy and purpose amidst suffering. - The transformative power of community and support systems. - Julia's work through the Hazelnut Movement and her advocacy on social media.