Lipedema Patient Roundtable: May 2026

American Lipedema Association Board Member Bailey Rotenberry-Maddox, a certified lymphedema therapist and nationally recognized lipedema educator, joined the May Lipedema Patient Roundtable as a special guest to share expert insights on improving awareness, support, and visibility for those living with lipedema.May is also Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month. Clinical expert Linda Anne Kahn and panelists impacted by these conditions discussed the unique challenges associated with connective tissue disorders, which commonly coexist with lipedema and can affect the skin, joints, blood vessels, and organs.One audience question sparked a lively discussion about the role of manual lymph drainage (MLD) for lipedema patients. While some attendees shared that they had been told MLD is ineffective for patients without lymphedema, panelists emphasized the value of pressure, fascia manipulation, and hands-on therapies in helping many patients find relief.Because there is no one-size-fits-all approach to managing lipedema, the conversation also explored the panelists’ varied approaches to nutrition. Many advocated for an anti-inflammatory diet and shared the benefits they experienced from reducing or eliminating sugar. And what about cheat days? “When you know how badly you’ll feel afterward, it’s not worth it,” said Siouxie Boshoff. Angelique Charles added that while she still enjoys favorites like gumbo, she has adapted recipes to better support her health and reduce inflammation.Excitement is also building around the upcoming announcement of the first annual “All or Something” Award, sponsored by the American Lipedema Association with funding provided by Lympha Press. The award honors a champion in the lipedema community who embodies the spirit of founding Roundtable panelist Pattie Cornute, whose Lipedema Fitness initiative impacted thousands worldwide before her passing in 2025.In recognition of Mental Health Awareness Month, the discussion also highlighted the importance of reducing toxic stressors—not just in food, but in everyday life and relationships. Panelists emphasized the value of supportive communities in helping patients reduce isolation, navigate overwhelming online information, and feel understood. Many attendees described the monthly Lipedema Patient Roundtable as “the best online group,” where safe, non-judgmental conversations help patients feel connected.Special thanks to our guest and anchor panelists:Jenny Beaujean (@Jenny_Beaujean)Siouxie Boshoff (@lipedema.living)Angelique Charles (@TheLippyButterfly)Linda Anne Kahn (@lindaannekahn)Bailey Rotenberry Maddox, CLT (@lipedemaspecialist)Brenda Viola (@BrendaViola_ViciCommunications)To find out more about pneumatic compression therapy that’s easy to live with, visit lymphapress.com.This Roundtable was originally recorded live on May 20, 2026, and has been edited for time. The views and opinions expressed in this Patient Roundtable are those of the individual participants and do not necessarily reflect the official position of Lympha Press.This video is intended for informational and educational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider with any questions about your condition or treatment.