Living Rare, Living Stronger: NORD Patient and Family Forum

from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy

We sit down with Rebecca Aune and Jack Timperly to talk about the upcoming NORD Patient and Family Forum on June 26 and 27. We discuss what's planned for the event, the annual Rare Impact Awards and why it's important to have rare patients involved in advocacy and educational programs. To register for the Living Rare, Living Stronger: NORD Patient and Family Forum, click here. To learn more about NORD, click here.

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This episode is 26 minutes long.

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This episode was published on June 4, 2021.

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