Living with Alexander Disease, with Amber Conn

Join the heartfelt conversation between Jordan Arogeti and Amber Conn as they discuss Amber's journey as a mother to a child with Alexander disease. This episode of the Moms Like Me podcast dives deep into the challenges and triumphs of raising a child with a rare neurodegenerative condition. Amber shares how her family coped with the diagnosis, the ongoing efforts to provide the best quality of life for her daughter, and the unwavering support from her community. Gain insights into advocacy, community support, and the strength that comes with navigating life’s unexpected challenges. Amber's candid reflections are not only moving but also a powerful reminder of resilience and love.