Living With Narcolepsy
from Sleep Talk - Talking all things sleep Hosted by SleepHub
Narcolepsy can have significant impact on health and function, which can also affect work and family. Often in managing narcolepsy the focus is on medication, but medications are often only partially effective. Learning how to live with these ongoing symptoms and reduce their impact is an important part of living well with narcolepsy. For more information on narcolepsy, see our narcolepsy page and listen to episode 2 of Sleep Talk where we talk about narcolepsy diagnosis and treatment Audio Timeline: 00:00 - 00:48 Introduction 00:48 - 04:14 What's in the news about sleep? 04:14 - 05:36 Theme introduction: Narcolepsy 05:36 - 32:42 Guest interview - Jacqui Tomlins: Living with narcolepsy 32:42 - 34:28 Clinical tip of the month - Build your own team 34:28 - 36:05 Pick of the month: Moira - What makes a good life? 36:05 - 37:47 Pick of the month: David - Waking, Dreaming, Being 37:47 - 38:54 What's coming up in the next month? Next episode (May 9th 2016): Sleep in New Parents Links mentioned in the podcast: Sleep Talk podcast episode 2 - Narcolepsy: Diagnosis & Treatment What is sleep eating? What is narcolepsy? Dating with narcolepsy - Julie Flygare in Women's Health Claire Crisp's site Narcolepsy page on SleepHub Sleep Talk podcast episode 2 - Narcolepsy: Diagnosis & Treatment Stanford Center for Narcolepsy Julie Flygare's site Wide Awake and Dreaming - Julie Flygare's book Narcolepsy Support Australia Narcolepsy Network What makes a good life? - TED talk Waking, Dreaming, Being - Evan Thompson
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Narcolepsy can have significant impact on health and function, which can also affect work and family. Often in managing narcolepsy the focus is on medication, but medications are often only partially effective. Learning how to live with these ongoing symptoms and reduce their impact is an important part of living well with narcolepsy.
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