Living with, Rather Than for, a Rare Disease

Travis Flores has had a lifelong battle with cystic fibrosis, a genetic disease that causes a buildup of mucus in the lungs and other organs and can lead to respiratory failure and problems in breaking down food and absorbing nutrients. Flores, who recently underwent a double lung transplant, continues to pursue his interests as an artist, philanthropist, and patient advocate. We spoke to Flores about his experiences, how rather than being a barrier, his disease has served as a source of motivation, and how he’s learned to live with, rather than for, his disease.