Living with the ME/CFS, Long COVID, and the Power of Advocacy with Julie Rehmeyer

What happens when science doesn’t have the answers? How do you navigate an illness that’s invisible, misunderstood, and often dismissed? And what does hope look like when the medical system can’t keep up with your reality?In this inspiring episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli sits down with award-winning journalist and author Julie Rehmeyer, whose memoir Through the Shadowlands chronicles her journey with ME/CFS (chronic fatigue syndrome). Julie shares how her trust in science was shaken when she became the patient instead of the reporter — and what she’s learned about resilience, advocacy, and finding meaning in the midst of uncertainty.Together, they discuss: ✔️ The emotional toll of living with an invisible illness ✔️ Why belief, time, and curiosity from doctors matter so deeply ✔️ The power of patient communities in driving knowledge and support ✔️ How science and lived experience can (and must) work together ✔️ Why there is real hope for the future of ME/CFS, long COVID, and beyondThis is more than a conversation about illness — it’s about humanity, perseverance, and the ways we can support one another when medicine doesn’t yet have all the answers.Listen to the next episode of "Ask the Patient Advocate" as we continue to empower you with insights and strategies for navigating your healthcare journey with confidence.If you have questions or topics you'd like us to explore, don't hesitate to reach out to us at [email protected]. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395Connect with Julie:https://www.julierehmeyer.com/https://www.facebook.com/julierehmeyerauthor/https://x.com/julierehmeyerConnect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com Hosted on Acast. See acast.com/privacy for more information.