EPISODE · Nov 23, 2024 · 37 MIN
Living with XLH: Parenting a child with a rare disease
from Living with XLH · host XLH Australia Inc.
This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition. Topics discussed: The journey to diagnosis Parenting a child with a rare disease Navigating healthcare and advocacy Links mentioned in this episode: www.xlhaustralia.com This podcast is hosted by ZenCast.fm
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Living with XLH: Parenting a child with a rare disease
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