LPH11: Benji and Sarah, inspired by Ellah, are shining a light on CSS and ACC

Join me on Let’s Plant Houses for a heartfelt conversation with Benji and Sarah as they reflect on their family’s extraordinary journey with their daughter, Ellah. Born with Coffin-Siris Syndrome (CSS) as well as a rare defect, Agenesis of the Corpus Callosum (ACC), Ellah faces unique health and developmental hurdles. Yet her resilience and push to be understood has created remarkable communication breakthroughs. Benji and Sarah delve into this story and more as well as their own incredible advocacy that has brought awareness of this rare condition to our local communities and beyond.