LPH43: Ben Duff on Life and Parenting With Profound Autism

What is it really like to raise a child with profound autism who needs 24/7 support? This episode explores profound autism, caregiving, and the real challenges families face every day. Guest Ben Duff shares his family’s honest and powerful story. Ben talks about the early signs they noticed, the emotional process of getting a diagnosis, and the daily work of managing medications, therapy, and changing behaviors through different stages of life. He also opens up about moments of crisis, hard care decisions, residential program options, and the ongoing need to advocate within a complex system. Ben offers simple and practical guidance for families just starting this journey. He shares how to build a strong support network, find resources that fit your child, and define what “success” means for your own family. This episode gives parents, caregivers, and anyone curious a clear and heartfelt look at the resilience involved in raising a child with profound autism.