Lucy’s Genetic Journey: My Amazing Parkinson’s Story episode artwork

EPISODE · Nov 15, 2025 · 1H 40M

Lucy’s Genetic Journey: My Amazing Parkinson’s Story

from 2 Parkies in a Pod: a Parkinson's Podcast · host Dave Clark & Kuhan

In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey.Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA test to explore her family roots soon led to life-changing revelations — uncovering far more than she ever expected.Before releasing this episode, we sought advice from Lucy’s counsellor, and we’ve taken every step to protect the privacy of everyone involved in this remarkable story.If you’ve been affected by the topics discussed, or want to learn more about genetic Parkinson’s, you can contact the Parkinson’s UK Helpline for confidential advice and support:📞 0808 800 0303📧 [email protected] Conceived Supporthttps://donorconceiveduk.org.uk (peer led support)https://www.uhliverpool.nhs.uk/services/service-finder/donor-conceived-register (national register)EJS ACT PD Get Involved https://www.ejsactpd.com/Watch 2 Parkies at Par-Conhttps://youtu.be/H7IFQfcp2osNeuro Heroeshttps://www.neuroheroes.co.uk/Parkinson’s Europe Work Surveyhttps://parkinsonseurope.org/parkinsonslife/careers-cut-short-financial-loss-and-fear-of-stigma-new-survey-working-with-parkinsons/Parkinson’s UK Nurse appealhttps://www.parkinsons.org.uk/donate/donate-great-careNeuralinkhttps://www.ucl.ac.uk/news/2025/oct/first-uk-patient-uses-thought-control-computer-hours-after-neuralink-implanthello@2parkiesinapod.com

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This episode was published on November 15, 2025.

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